Irish Haemophilia Society
Virtual Conference & AGM
March 1 - 3, 2021
THIS EVENT IS FREE TO ATTEND BUT YOU MUST REGISTER BEFOREHAND
Monday, March 1 :: Theme: Treatment::
18.00 – 18.45 Review of Novel Therapies
Speaker: Professor Flora Peyvandi
Professor Peyvandi will review the rapidly evolving landscape of developments in novel therapies for people with bleeding disorders.
18.00 – 18.30 Presentation
18.30 – 18.45 Q&A
Professor Peyvandi will review the rapidly evolving landscape of developments in novel therapies for people with bleeding disorders.
18.00 – 18.30 Presentation
18.30 – 18.45 Q&A
18.45 – 19.00 Break
19.00 – 19.45 An Overview of Gene Therapy
Speaker: Professor David Lillicrap
Professor Lillicrap will present an overview of developments in gene therapy for haemophilia.
19.00 – 19.30 Presentation
19.30 – 19.45 Q&A
Professor Lillicrap will present an overview of developments in gene therapy for haemophilia.
19.00 – 19.30 Presentation
19.30 – 19.45 Q&A
19.45 – 20.00 Discussion Panel
Tuesday, March 2 :: Theme: Comprehensive Care ::
18.00 – 18.40 Covid-19 & Vaccines
Speaker: Dr. Cillian De Gascun
Dr. De Gascun will present an overview of the current situation and thinking regarding vaccination for Covid-19 in Ireland.
18.00 – 18.20 Presentation
18.20 – 18.40 Q&A
Dr. De Gascun will present an overview of the current situation and thinking regarding vaccination for Covid-19 in Ireland.
18.00 – 18.20 Presentation
18.20 – 18.40 Q&A
18.40 – 18.50 Break
18.50 – 19.20 The Use of Technology
Speakers: Mr. Feargal McGroarty, Dr. Niamh O’Connell
Mr. McGroarty and Dr. O’Connell will give an update on the Lighthouse Project including the Patient Portal. This
project aims to achieve improvements in healthcare delivery, quality & safety, patient experience and cost effectiveness.
18.50 – 19.00 Mr. Feargal McGroarty
19.00 – 19.10 Dr. Niamh O’Connell
19.10 – 19.20 Q&A
Mr. McGroarty and Dr. O’Connell will give an update on the Lighthouse Project including the Patient Portal. This
project aims to achieve improvements in healthcare delivery, quality & safety, patient experience and cost effectiveness.
18.50 – 19.00 Mr. Feargal McGroarty
19.00 – 19.10 Dr. Niamh O’Connell
19.10 – 19.20 Q&A
19.20 – 19.40 Dental Care
Speaker: Dr. Alison Dougall
Dr. Dougall will give a short update on Dental Care during the pandemic and will then take your questions.
19.20 – 19.35 Presentation
19.35 – 19.40 Q&A
Dr. Dougall will give a short update on Dental Care during the pandemic and will then take your questions.
19.20 – 19.35 Presentation
19.35 – 19.40 Q&A
19.40 – 20.00 Targeted Physio at Home
Speaker: Mr. Mark McGowan
Mr. McGowan will provide an overview of the provision of targeted physiotherapy in the home, for individuals and groups.
19.40 – 19.55 Presentation
19.55 – 20.00 Q&A
Mr. McGowan will provide an overview of the provision of targeted physiotherapy in the home, for individuals and groups.
19.40 – 19.55 Presentation
19.55 – 20.00 Q&A
Tuesday, March 2 :: Continued ::
Parrell Session from 18.50 :: Theme: von Willebrand’s Disorder
18.50 – 19.30 Update on vWD Guidelines, Treatment and Care
Speaker: Dr. Michelle Lavin
Dr. Lavin will give an update on the newly published guidelines on the diagnosis and management of von Willebrand’s, along with
current treatment protocols.
18.50 – 19.30 Presentation
Dr. Lavin will give an update on the newly published guidelines on the diagnosis and management of von Willebrand’s, along with
current treatment protocols.
18.50 – 19.30 Presentation
19.30 – 20.00 Living with vWD, a panel discussion
Speakers: Mr. Donal McCann & Ms. Breda Queally
The panel discussion will discuss the needs of patients with von Willebrand’s with two speakers talking about their own personal
experiences.
19.30 – 20.00 Q&A
The panel discussion will discuss the needs of patients with von Willebrand’s with two speakers talking about their own personal
experiences.
19.30 – 20.00 Q&A
Wednesday, March 3 :: Theme: Changing Face of Treatment in Ireland
18.00 – 18.30 Update on iPATH
Speaker: Professor James O’Donnell
Professor O’Donnell will give an update on where we are at with progress on the innovative Irish Personalised Approach to the Treatment
of Haemophilia (iPATH) research programme.
18.00 – 18.25 Presentation
18.25 – 18.30 Q&A
Professor O’Donnell will give an update on where we are at with progress on the innovative Irish Personalised Approach to the Treatment
of Haemophilia (iPATH) research programme.
18.00 – 18.25 Presentation
18.25 – 18.30 Q&A
18.30 – 18.40 Break
18.40 – 19.00 Resilience and Mental Health
Speaker: Dr. Patricia Byrne
Dr. Byrne will give some tips and advice on how to stay positive and build resilience during these challenging times.
18.40 – 18.55 Presentation
18.55 – 19.00 Q&A
Dr. Byrne will give some tips and advice on how to stay positive and build resilience during these challenging times.
18.40 – 18.55 Presentation
18.55 – 19.00 Q&A
19.00 – 19.45 The Changing Face of Treatment in Ireland
Speakers: Dr. Beatrice Nolan, Dr. Niamh O’Connell, Mr. Declan Noone and Mr. Brian O’Mahony
The speakers will discuss potential future changes in treatment and care in Ireland for haemophilia and von Willebrand’s disorder, the use of telemedicine and technology and increased patient engagement.
The speakers will discuss potential future changes in treatment and care in Ireland for haemophilia and von Willebrand’s disorder, the use of telemedicine and technology and increased patient engagement.
19.45 – 20.00 Questions and Answers
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